Baby Jaxon is living much longer than expected.
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Brittany Buell stays at home to care for Jaxon, which the Buells can afford thanks in part to a GoFundMe page that was set up for the family. The little boy has microhydranencephaly, an extreme brain malformation that many doctors predicted would end his life soon after birth. The infant is doing so well he even got his first trip to visit Santa Claus and sit on his lap. When asked about Jaxon his father said that he is in one of the best places he’s ever been and that he hopes that this will continue. It was the boy’s first visit with Santa. Jaxon Buell, whose incredible story was shared all over the Internet with the #JaxonStrong hashtag, was pictured snuggling Santa recently and social media has gone into a frenzy over it.
Jaxon came into the world on August 27, 2014 and was diagnosed with microhydranecephaly, a rare brain condition combining symptoms of mycrocephaly and hydranencephaly, characterized by slowed physical and intellectual development and a shortened projected lifespan.
“We’re just so relieved and happy to watch our son growing before our eyes”.
“A happy Jaxon looking at and feeling the Christmas tree”, Brandon Buell writes on his Facebook.
The courageous boy has been aptly nicknamed Jaxon Strong and has his own facebook page to help raise awareness of his condition.
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A question mark hangs over the future of Jaxon but his parents are determined to give him the best years of his life, no matter how many they will be. “Jaxon may ultimately live a shorter life, but he will, as so many other special needs children also will, impact and inspire more lives in their time with us than I or so many others will that do not deal with their struggles”, Brandon Buell wrote on Facebook.
